Finding Joy on the Rollercoaster

I don’t like rollercoasters.

Yes, really.  I have just never seen the attraction of making a slow climb up a long incline just to feel the bottom drop out as you plunge straight down at a breakneck speed. If you manage to survive that, you are rewarded with either another slow climb followed by a quick drop or thrown completely upside down. This happens over and over for several minutes before things finally even out and you slow to a stop bewildered and sick to your stomach.

My friends and family have been trying to get me to ride rollercoasters for years, but I’ve always declined, “You’ll never catch me on one of those things!” But what’s that saying, “If you want to make God laugh, tell him your plans?” For 34 years I have been successful at avoiding rollercoasters, and then suddenly I found myself the mother of not one, but two babies in the NICU.

While I was recovering in the hospital after giving birth 13 weeks early, one of my doctors warned my husband and I that there would be good days and bad days and that it would feel like we were on a rollercoaster. I didn’t believe her. I was sure that with all the people all over the world praying for my babies, we were going to be the exception. I just knew that Hannah and Naomi would sail through the NICU without a single setback or issue.

Boy was I wrong….

At first it seemed that my confidence in my daughters’ abilities was spot on. They were not requiring a lot of oxygen and each day the report was that they were doing well. Our confidence in the idea that we were the exception grew. Even when faced with a doctor who seemed keen to focus on the negative aspects of what we could face during our time in the NICU, we continued to see the girls doing amazing things. After two successful surgeries to fix arteries in their hearts, we were able to start weaning Hannah off the ventilator and start a continuous drip of food. Naomi’s lungs are too sick to come off the ventilator but they were able to start feeds. Again, we got excited because they were handling everything so well.

Then everything changed.

Both girls started showing signs of being unable to tolerate their feeds and then showed signs of infection. Doctors made the decision to stop feeds and put Hannah back on the ventilator. After several weeks of improvements we were back to where we started. It was difficult to accept but once she was well enough they took her off the ventilator and she has sailed through to the final step before she’s able to breathe on her own.  Naomi is still on the ventilator and still struggling with breathing and with eating. She has had a couple of infections which luckily are localized to her breathing tube and not widespread.

It’s difficult going to visit them and  not knowing what situation we are walking into. Are the girls having a good day or are they struggling? Lately it seems like we have had more days of struggles and difficulties than we have had good days. Most of the time I feel like I am able to stay positive even in the midst of the low points. Other days I feel helpless or angry about the situation and I don’t handle the stress very well. But always, I have hope. I know that even though we are stuck on this slow, scary rollercoaster with all its peaks and valleys and crazy loops, God is in control of the ride.  And because He is in control, I know that ultimately everything is going to be ok.

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One thought on “Finding Joy on the Rollercoaster

  1. Sometimes when I’m in the mist of a trial I remind myself of dory when she sings just keep swimming. I watch a lot of Disney. You can do this, keep trusting the lord with all your heart.

    Like

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